I went on a forum for ataxia sufferers. I thought they'd be better able to relate to me, and to give me comfort in my sufferings. I figured they'd understand me better since they suffer in the same way I do. Thing is, they don't suffer in the same way I do. Many on the forum are suffering without Christ, suffering with no hope. I tried to encourage a few, but I left the forum very discouraged by the negative and defeatist attitudes. No, they don't understand me at all, or offer any comfort. My Christian friends who suffer in ways not at all similar to me, but who share in the same hope I have, are the ones who truly understand me and can comfort me with divine comfort.
Also, I noticed many ataxia sufferers refer to themselves as "ataxians". I don't want to put any label on myself, least of all that one. I don't want to be defined by what I CAN'T do, or defined by a disease. I have a good life, a blessed life. Why would I want to focus on the negative?
We laughed and played.
We had days in the sun
and days in the shade.
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I share your frustration though not your disease. Who wants a label other than follower of Christ?
"Ataxian???"
Okay, that just sounds like one of those made-up alien nations on Star Trek TNG that get assimilated by the Borg.
A Christ-ian, OTOH, is a member of supernatural race, temporarily imprisoned in an increasingly decaying shell, waiting for the day when it will be discarded completely and its outside will match its inside.
Just sayin.'
Let's call ourselves NoLabelians. We are NoLabelians.
Funny. I appreciate that you make me laugh and think . . . and think that I'm laughing.
You can't be labeled because, truly, you are in a class all your own.
. . . says the guy with fire-guns for arms.
I'd rather be a "Christian" than an "atoxian" any day. :)
I love this post. I love that this is your perspective.
I think you are a Christian who just happens to have ataxia.
The disease does not define you, it's your relationship with Christ that defines you.
We all suffer in one way or another, whether it be from atoxia, cancer, asthma or a broken heart. I'm glad you have so many Christian friends to comfort you. Where would we be without our friends.
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